The c4c project aims to raise awareness and support the involvement of patients, families, children and young people in pediatric clinical trials.

The conect4children (c4c) project has an innovative approach in the development of the Pediatric Clinical Research, as the involvement of patients, families/caregivers regarding clinical trials design and implementation is prioritized. c4c has setup a database to gather information on patients, caregivers, patients organizations and/or YPAGs (Young Person’s advisory boards) of rare/pediatric diseases willing to act as experts providing advice when required.
Some examples of activities in which patients are being involved include protocol and information addressed to the participants of the trials revision. As a member of this pool of patient/YPAG representatives, participants are offered the proper training and information regarding their involvement in the proposed activities when necessary.

The c4c provides a set of materials on the importance of involving families, children and young people in the development of pediatric clinical trials.

  • You can access some educative material available [HERE].
  • If you wish to be included at the project database please access the following [LINK].
  • You can the c4c flyer for patients [HERE]
  • You can access the c4c videos in the following [LINK].
  • You can access the c4c Podcast in the following [LINK].
  • If you wish you can also subscribe the c4c Newsletter [SUBSCRIPTION].

This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 777389. The Joint Undertaking receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA