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1st YPAGLisboa Meeting with the support of STAND4Kids

The 1st Meeting of the YPAG Lisboa was held on 20th December 2021 with the support of the pediatric trials network STAND4Kids. 11 children and young people participated in this meeting to share perspectives and experiences on clinical research.  The YPAGLisboa is a is a Young Persons Advisory Group, coordinated by the Professor Helena Fonseca,...
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Peer-review publication with STAND4Kids co-authorship reveals the importance of collaboration between national networks to capture the early effects of the COVID-19 pandemic on pediatric clinical research

A recent peer-review article published in the “The Journal of Pediatrics” with collaboration of the STAND4Kids team and co-authorship of Professor Ricardo Fernandes, STAND4Kids Project Lead is already available. This article entitled “Early Impact of Severe Acute Respiratory Syndrome Coronavirus 2 on Pediatric Clinical Research: A Pan-European and Canadian Snapshot in Time” illustrates the importance of collaborating between national networks to...
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YPAGLisboa Sharing Meeting with Kids France

The YPAG Lisboa and Kids France group met on 18th November 2021, at AIDFM-CETERA, in an initiative hosted by STAND4Kids. The YPAGLisboa is a is a Young Persons Advisory Group, coordinated by the Professor Helena Soares, from the Faculty of Medicine, University of Lisbon. This is an advisory group made up of children and young...
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STAND4Kids was present at the Epilepsy Week 2021 (8th to 13th March)

The Epilepsy Week is an initiative from Liga Portuguesa contra a Epilepsia (Portuguese League against Epilepsy) which celebrates 50 years in 2021. During this week, several events took place, such as webinars, workshops and symposia that addressed various epilepsy-related themes. Prof. Doutor Ricardo Fernandes participated in the Webinar “Space for Epilepsy Patients’ Associations” and presented...
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STAND4Kids meets with research centres

On the 12th March STAND4Kids launched their Sharing Sessions, bimestral meetings with the research centres from its network. We aim at creating an environment where sites/ investigators/ research teams share their experiences and knowledge, to strengthen our network and promote Pediatric Clinical Research in Portugal.
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KD-CAAP (Kawasaki Disease Coronary Artery Aneurysm Prevention) trial: first site activated and ready for recruitment

KD-CAAP is the first investigator driven trial funded by conect4children to have a site activated and to start the patients’ recruitment. KD-CAAP main objective is to  determine whether adding immediate corticosteroid treatment to standard of care (intravenous immunoglobulin (IVIG) and aspirin) will reduce coronary artery aneurysm (CAA) rates in Kawasaki Disease patients. Find more about...
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Enrolment for the 3rd edition of the “Involving Children and Young Patients and Families’ in Designing Clinical Research” course is open

Enrolment for the 3rd edition of the “Involving Children and Young Patients and Families’ in Designing Clinical Research” c4c Academy course is open until September 22nd. This course is intended to research teams belonging to the STAND4Kids network sites’ and STAND4Kids’ Patient and Public Involvement liaisons. Reach us for more information and registration.
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STAND4Kids Newsletter #2 is now available

Download here the new STAND4Kids Newsletter and find all about what we have been working on!
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This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 777389. The Joint Undertaking receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA