Family, Children and Young Patients

The c4c project organised the c4c “train the trainers” virtual workshop on 16th and17September 2020 for patients and patient representatives/associations interested in learning more about the life cycle of medicines. This activity aimed at involving patients in the c4c project and promoting awareness of patient organisations to support patient/family involvement at European level in paediatric clinical trials.  The topics discussed include: clinical trial methodology, clinical research and ethics in drug development. More information [HERE].

The conect4children (c4c) project has an innovative approach in the development of the Pediatric Clinical Research, as the involvement of patients, families/caregivers regarding clinical trials design and implementation is prioritized.c4c has setup a database to gather information on patients, caregivers, patients organizations and/or YPAGs (Young Person’s advisory boards) of rare/pediatric diseases willing to act as experts providing advice when required.
Some examples of activities in which patients will be involved include protocol and information addressed to the participants of the trials revision.As a member of this pool of patient/YPAG representatives, participants will be offered the proper training and information regarding their involvement in the proposed activities when necessary.

More information about these activities [HERE].

This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 777389. The Joint Undertaking receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA